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| Cancer Resource ListInternet links for the caring cancer consumer and patient advocate. Mostly gathered by Kathy Meade, Arlington Educational Consulting, phone 804-445-9681
Resource designed to help individuals and organizations find ways to participate and engage your community in clinical trials outreach and education activities. Includes worksheets and a Plan for Action to help both individuals and organizations plan outreach efforts. http://www.cancer.gov/clinicaltrials/resources/outreach-education-advocacy Videos available from NCI please call 1-800-4-CANCER (1-800-422-6237), 9:00 a.m. to 4:30 p.m. Eastern time, Monday through Friday; TTY 1-800-332-8615 Cancer Trials... Because Lives Depend On It Video that discusses prevention and treatment clinical trials to create general awareness about them. (10 minutes; includes discussion guide) Cancer Clinical Trials: An Introduction for Patients and Their Families Video that discusses treatment clinical trials for patients and their families who may be considering participation. (18 minutes; including discussion guide) Anyone participating in a clinical trial in the United States is required to sign an "informed consent" form. This form details the nature of the study, the risks involved, and what may happen to a patient in the study. The informed consent tells patients that they have a right to leave the study at any time. http://www.centerwatch.com/bookstore/freeresearch.html Slide Programs on CD-ROM please call 1-800-4-CANCER (1-800-422-6237), 9:00 a.m. to 4:30 p.m. Eastern time, Monday through Friday; TTY If You Have Cancer: What You Should Know About Clinical Trials http://www.cancer.gov/clinicaltrials/resources/what-to-know-about-trials If You Have Cancer and Have Medicare... You Should Know About Clinical Trials http://www.cancer.gov/clinicaltrials/resources/medicare-and-cancer-trials Taking Part in Clinical Trials: What Cancer Patients Need to Know http://www.cancer.gov/clinicaltrials/resources/taking-part-treatment-trials Also available in Spanish version. https://cissecure.nci.nih.gov/ncipubs/details.asp?pid=756 Taking Part in Clinical Trials: Cancer Prevention Studies http://www.cancer.gov/clinicaltrials/resources/taking-part-prevention-trials Also available in Spanish Version. https://cissecure.nci.nih.gov/ncipubs/details.asp?pid=724 If You Want To Find Ways To Prevent Cancer...Learn About Prevention Clinical Trials http://www.cancer.gov/clinicaltrials/learning/about-prevention-trials Read this document if you are considering a clinical trial http://www.cancer.org/docroot/ETO/content/ETO_6_3_Clinical_Trials_-_Patient_Participation.asp AccessWatch is a new web-based information clearinghouse designed to inform lawmakers how recent changes in Medicare funding for cancer care are affecting patients and their access to community cancer care. Concerned Members of Congress have asked the cancer community to gather information regarding any impact the Medicare Modernization Act has on cancer care. AccessWatch was created to provide a forum where the cancer community can come together to respond to this request. Printable pdf to educate people http://www.cancertrialshelp.org/pdfs/accessWatch.pdf Website http://www.accesswatch.org/ Slide presentation on clinical trials http://www.ncipoet.org/docs/28 HealthCareCoach.com is a project of the National Health Law Program NHeLP), a non-profit legal organization. The site will help consumers access quality health care, and educate them about their legal rights and provide information and policy advocacy. Learn strategies to help you manage the physical and emotional responsibilities of caregiving, find home health services, identify community resources and sustain yourself as a caregiver. http://www.canceradvocacy.org/resources/essential/ The process of new drug development has many parts. In the United States, until a drug has been approved by the FDA, it can generally be obtained only through several mechanisms: enrollment in a clinical trial studying the drug, an expanded access program or special exemption/compassionate use programs. This series of questions and answers addresses some of the issues surrounding access to drugs that are still considered investigational or under study. http://www.acor.org/clinical/indaccess.html Quick Drug Information This database provides a summarized glance at concise drug information including proper usage, precautions, interaction warnings, and side effects for prescription and non-prescription drugs. http://tinyurl.com/9uoo7 Today, many people benefit from the findings of cancer prevention and treatment clinical trials. With the additional resources provided through the DoD/NCI cancer clinical trials agreement, you and your doctor can make the best choice for your health care http://www.tricare.osd.mil/cancertrials/patients.cfm Evaluation Of Randomized Controlled Trials M.J.McKeown, MD, FACOG, FACS Objective and Ethics Outcome Measures Interventions Study Population And Sample Size Checklist For Appraising Randomized Trials http://www.cancerlynx.com/trialcheck.html For in depth information on how the clinical trial system works, see http://www.cancerguide.org/clinical_trials.html Understanding The Clinical Trial System. last updated 10/09/2006 |
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